Ceisteanna ar Pholasaí nó ar Reachtaíocht – Questions on Policy or Legislation
Dail Éireann — 2022-06-15
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Gino Kenny (PBP), Dublin Mid-West

Thirty-five children with cystic fibrosis have been excluded from accessing the drug Kaftrio. The reasons for their exclusion are primarily price and age. This is an ongoing dispute with the HSE and the manufacturer of the drug, Vertex. The families of those 35 children have been requesting a meeting with the Minister, Deputy Donnelly, as soon as possible to clarify the situation. As the Minister will understand, the families do not want a protracted series of events going on for years, as has happened with other drugs in the past. A number of families have contacted me and other Deputies here to say they want this drug to be available for the 35 children. They are being excluded generally because of price and age but they want to get this drug as soon as possible.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2022-06-15/debate/main
Retrieved: 2026-08-14T04:50:34+00:00
Sitting date: 2022-06-15