Ceisteanna ar Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation
Dail Éireann — 2022-12-08
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Pádraig O'Sullivan (FF), Cork North-Central

I have raised the issue of orphan drugs and rare diseases with the Tánaiste before. It is fitting that I raise again this week, given the announcement in relation to Kaftrio this week and the disappointment that that has caused for that cohort of patients.
The Minister for Health, Deputy Donnelly, has previously given me a commitment that he will publish the Mazars report into the reimbursement process and that is welcome. While I welcome that, there is so much more we can do, including risk sharing and conditional reimbursement. All these steps are being taken in other EU countries and we are laggards in that regard. I am just asking that when the Tánaiste assumes the office of Taoiseach in the coming weeks he will give this issue the attention it deserves and will prioritise it.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2022-12-08/debate/main
Retrieved: 2026-08-14T04:51:24+00:00
Sitting date: 2022-12-08