Ceisteanna ar Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation Dail Éireann — 2023-03-22 ============================================================ Gino Kenny (PBP), Dublin Mid-West There was very good news today for 35 children in the State who live with cystic fibrosis. The families and Cystic Fibrosis Ireland have fought very hard on the injustice of these 35 children not having access to certain drugs. There are huge lessons to be learned, not only with regard to reimbursement but also around companies like Vertex International, the pharmaceutical company that is based in Dublin. This company has made a grotesque amount of profit, particularly on this drug. These profits run not into millions but billions of euro. The lesson must be learned as to why these companies have governments and, more importantly, families over a barrel with regard to accessing these drugs. What lessons are to be learned considering that we have a huge pharmaceutical industry in Ireland? --- Source: Houses of the Oireachtas. Licensed under CC BY 4.0 (https://creativecommons.org/licenses/by/4.0/). The Official Report is revised after first publication; the fetch timestamp below identifies the version quoted. Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2023-03-22/debate/main Retrieved: 2026-08-14T04:51:42+00:00 Sitting date: 2023-03-22