Ceisteanna ó Cheannairí - Leaders' Questions
Dail Éireann — 2026-07-16
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Simon Harris (FG), Wicklow

The 27 May 2026 is when the information came in versus 2024, but I accept the seriousness of this matter. Again, this is also just the truth: there are mixed views on the science in relation to this. A number of European countries have said "No". Some have said "Yes". We would not have a situation where the HSE drugs group was deciding to set up a rare diseases expert panel to look at this, to bring together the national experts and the patient advocates, to hear their voices and views, if they did not want to give this every possible chance.
I take the point about timelines. That is why it is important that there is a four-week period now to hear those voices, to hear that lived experience and, crucially, to hear from the doctors. I am not one. We must hear from the clinical experts who specialise in this condition in Ireland about the effectiveness of this drug. We will continue to monitor the outcome of that very closely.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-07-16/debate/main
Retrieved: 2026-08-27T06:52:17+00:00
Sitting date: 2026-07-16