Ceisteanna ar Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation
Dail Éireann — 2026-04-30
============================================================

Simon Harris (FG), Wicklow

I thank the Deputy for raising this issue again and for acknowledging Deputy's Aird's interest and work in this area as well. I am very sorry to hear of those extraordinarily painful, difficult and sad situations regarding children. I will seek an urgent update from the Minister on the specific drug and the condition to which it relates and on the Deputy's broader point regarding early access.
I am taken by the point the Deputy made in respect of the process, particularly as, quite frankly we are now in a vastly different situation, from a funding point of view, in relation to new drugs than we were when I was Minister for Health. The drugs budget now is €4 billion a year-----

---

Source: Houses of the Oireachtas. Licensed under CC BY 4.0 (https://creativecommons.org/licenses/by/4.0/). The Official Report is revised after first publication; the fetch timestamp below identifies the version quoted.

Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-04-30/debate/main
Retrieved: 2026-08-27T06:54:49+00:00
Sitting date: 2026-04-30