Medicinal Products
Dail Éireann — 2026-05-13
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Pat the Cope Gallagher (FF), Donegal

What is difficult to understand is that givinostat is available in most EU countries. Whatever is going to be decided now must be fast-tracked. The Minister of State referred to the receipt of a commercial offer on Friday, 8 May. In the next few weeks, a decision must be taken. The ironic thing about this is that Aaron's family lives in Laghy, close to the Border and the O'Sullivan family lives in Ballybofey, close to the Border. The children on the other side of the Border, in Fermanagh, Tyrone or wherever are availing of this. It is vital that there is no discrimination as far as these children are concerned. We are pleading with the Minister of State and with the Minister, who is pragmatic - we have had dealings with her about issues in Donegal. I hope a decision can be taken soon. The question of finance should not be an issue. I am calling on all concerned, including the drug company, the HSE and the Department, to ensure these children can avail of this treatment as soon as possible.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-05-13/debate/main
Retrieved: 2026-09-14T01:01:03+00:00
Sitting date: 2026-05-13