Cabinet Committees
Dail Éireann — 2026-06-09
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Darren O'Rourke (SF), Meath East

Children with Duchenne muscular dystrophy in Ireland are still denied access to givinostat, a transformative drug. I understand that the HSE drugs group is to meet tomorrow, 10 June, to consider givinostat for reimbursement. This is after more than a year since it was licensed at European level.
A number of serious criteria need to be met in relation to it, principal among these is that the eligibility criteria would be aligned with the National Institute for Clinical Excellence, NICE, approach ensuring access for boys who can walk or who can stand with or without support to ensure Irish boys are not treated differently from their British or European counterparts.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-06-09/debate/main
Retrieved: 2026-09-14T01:01:05+00:00
Sitting date: 2026-06-09