Medicinal Products Dail Éireann — 2026-07-01 ============================================================ Jennifer Murnane O'Connor (FF), Carlow-Kilkenny Two new frameworks are agreed with Medicines for Ireland. This is the Irish pharmaceutical healthcare association on the supply and pricing of medicines. These have been successfully reached following extensive negotiation with the pharmaceutical sector. These two new framework agreements will change things. A tender for conducting this review was published on Monday, 15 June. Once commenced, the project timeline is between six and nine months. Together these measures will enable faster access to medicines for patients in Ireland. I thank the Deputy for this. I will talk about my own constituency. I have met with a lot of families in Carlow affected by Friedreich's ataxia, particularly Emily and Oisín. As the Deputy said, it is important. The next HSE drugs group is meeting on Tuesday, 14 July and that will be discussed. Skyclarys is on the agenda for that meeting. It is important because I have met with so many families in Carlow-Kilkenny and with constituents who need this drug. These families are waiting to get it urgently. Like everything, there is due diligence and funding is always spoken about. It is important that we know we have the date for it. The meeting is on Tuesday, 14 July with the drugs group and Skyclarys is on the agenda for that group meeting. I will bring all of the Deputy's important issues and concerns on timing to the Minister, Deputy Jennifer Carroll MacNeill. Unfortunately, she could not take this Topical Issue. --- Source: Houses of the Oireachtas. Licensed under CC BY 4.0 (https://creativecommons.org/licenses/by/4.0/). The Official Report is revised after first publication; the fetch timestamp below identifies the version quoted. Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-07-01/debate/main Retrieved: 2026-09-14T01:01:06+00:00 Sitting date: 2026-07-01