An tOrd Gnó - Order of Business
Dail Éireann — 2026-07-07
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Michael Collins (II), Cork South-West

I am speaking today on behalf of families living with Friedrich's ataxia who are running out of time while waiting for access to Skyclarys, the only approved treatment for this cruel disease. For these patients, every week that passes means more mobility loss, more independence gone and more heartbreak for families watching their loved ones deteriorate. This disease does not wait for meetings, reports or lengthy negotiations. These families need action, not more promises. Will the Minister, Deputy Chambers, now engage directly with the Minister for Health and the HSE to ensure the reimbursement process is prioritised, negotiations with the manufacturers are brought to a conclusion without further delay and every flexibility available to the Government is utilised to expedite the decision? Emma O'Shea is one of these patients, who do not have the luxury of time and who deserve to know that the full weight of Government is behind getting this treatment over the line.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-07-07/debate/main
Retrieved: 2026-09-14T01:01:07+00:00
Sitting date: 2026-07-07