Ceisteanna ó Cheannairí - Leaders' Questions
Dail Éireann — 2026-07-15
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David Cullinane (SF), Waterford

I met many of those patients and people with the illness yesterday. Many of them were here in Leinster House. They told me, as they have in the past, they cannot walk and they cannot swallow and, as the Taoiseach acknowledged, it is also very difficult for their families who have to watch as their condition worsens and the disease progresses. This drug was approved by the European Union in 2024, over two years ago. It is publicly available in many European countries and yet again Ireland lags behind and we are not providing this drug. I see it simply. This is about empowering the clinicians. At the moment clinicians treating those patients do not have the option of prescribing that drug. We should enable them to have that option because this is an issue for clinicians and patients to work out the best treatment for those patients. That is an option available in Italy, Germany and other countries. It is not available in Ireland.
When is that group going to be convened because those people who were here yesterday were really upset? There was no communication. They were making phone calls, and they fear more months of delay before a decision is made.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-07-15/debate/main
Retrieved: 2026-09-14T01:01:08+00:00
Sitting date: 2026-07-15