Ceisteanna ar Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation
Dail Éireann — 2026-07-15
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Micheál Martin (FF), Cork South-Central

I thank the Deputy for raising this matter, which I dealt with extensively earlier in reply to Deputy Cullinane. The Minister is doing everything she can to expedite the convening of the rare disease technology group, to which the matter has been referred. This is very serious and urgent for all concerned. Some countries do reimburse it and others do not. The health technology assessment relating to this matter was published. If the Deputy reads that assessment, she will see that it proved challenging. We are not scientists, but we all feel for the families. We understand. We have met people with Friedreich's ataxia. They cannot get this drug fast enough. For all drug approvals unfortunately, there are processes which, unfortunately, have to be gone through. I take the Deputy's point.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-07-15/debate/main
Retrieved: 2026-09-14T01:01:08+00:00
Sitting date: 2026-07-15