An tOrd Gnó - Order of Business
Dail Éireann — 2026-04-21
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Ken O'Flynn (II), Cork North-Central

In my constituency a family have already buried one child due to Friedreich's ataxia and their second child is now in a wheelchair due to the same disease, which is advancing. A treatment called SkyClarys is clinically approved and has been shown to slow the progress and the State refuses to reimburse it. Let me be clear: this is not about science or availability; this is about a decision not to fund. What does the Taoiseach say to parents watching their child's disease progress in real time while a treatment exists but is withheld? I want to ask him a direct question. Will he instruct the Minister for Health to fast-track a reimbursement decision for SkyClarys and define the timeframe? Yes or no.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-04-21/debate/main
Retrieved: 2026-09-21T01:01:08+00:00
Sitting date: 2026-04-21