Ceisteanna ar Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation
Dail Éireann — 2026-04-29
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Thomas Gould (SF), Cork North-Central

Most days, the Taoiseach and I fight and argue about policy and politics. Today, is not one of those days. I come in here today to speak on behalf of Craig Coady. He had a family, a wife and two sons. His wife now is in long-term hospitalisation. She has Huntington's disease. They buried their 13-year-old son Rory, who died as a result of Friedreich's ataxia. Their second son Paudie, who is 15 years old, is dying of the same disease. Skyclarys is not a perfect medicine. It is not a cure, but it has been shown repeatedly to have clinical benefits in slowing the disease. I am asking that under the compassionate access programme, as happens in France, this drug be provided to Paudie.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-04-29/debate/main
Retrieved: 2026-09-21T01:01:08+00:00
Sitting date: 2026-04-29