Ceisteanna ar Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation
Dail Éireann — 2026-05-07
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Natasha Newsome Drennan (SF), Carlow-Kilkenny

I raise with the Minister the case of Oisín Pollard. At nine years of age, Oisín was diagnosed with Friedreich's ataxia. For the past 18 years, he has battled on. For most of those 18 years, he was told there was no treatment. Now, for the first time, there is hope. Skyclarys has been rolled out by other EU states with great effect. It is life-changing. However, little progress has been made here. The HSE remains locked into a haggling war over price. For the small number of people suffering with this rare condition, time is precious. It has been nearly two years since Biogen applied to the HSE for reimbursement of this drug. I ask that the Tánaiste, the Taoiseach and the Minister for Health engage with the HSE to ensure that a solution is found so that Oisín and others get the urgent support they need.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-05-07/debate/main
Retrieved: 2026-09-28T05:50:46+00:00
Sitting date: 2026-05-07