Rare Diseases
Dail Éireann — 2026-05-20
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Fionntán Ó Súilleabháin (SF), Wicklow-Wexford

With respect, that is very similar to a stock answer the family has been given over the past few months. I will not accept the answer and I know Eímear, her family and the community in south Wicklow will not accept this answer from the Government or the Department. It is a stock answer and it is simply not good enough. This involves tiny money. The Minister of State said I referenced the EU and the EEA. I did not. I know that the treatment abroad scheme has certain confinement. What I am talking about is the exceptional clause circumstances for going to the USA. That clause exists, and it is within the power of the Minister to implement it. That can happen if the will is there. I am just not sure the will is there and I want to know if it is on the part of the Department.
I am somewhat reassured that the Minister of State indicated that it was at a particular time that the applicant did not meet the criteria and that she will continue to engage with the HSE. I would hate to think the door is closed on this because it is very much not closed. This is time sensitive and I am pleading with the Minister to act on it. The family and community are also pleading with her to do so. They cannot waste more time waiting. Who knows when they are next, if they wake up the following morning. I will not embarrass the Government by going through a list of projects in the country, or even in County Wicklow, where State money has been wasted. This is most definitely pin money to the Government, which could save someone's life and make a massive difference. I plead with the Minister to use the power she has to see that this can be done as soon as possible.

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Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-05-20/debate/main
Retrieved: 2026-09-28T05:50:47+00:00
Sitting date: 2026-05-20