Ceisteanna ar Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation Dail Éireann — 2026-05-20 ============================================================ Micheál Martin (FF), Cork South-Central I thank the Deputy for raising this issue. He has been a strong advocate for reform of the reimbursement scheme, particularly insofar as it applies to what we might term orphan drugs. There is a growing issue here in terms of how some of these drugs are coming onto the market, the level of engagement between some companies and the State and, yes, our own system as well. Some companies are more accessible in terms of engaging with than others, but that is of no value to those who need the medicines quickly. I am aware of the cases the Deputy mentioned and the urgency attached to them. I have spoken to the Minister for Health about this issue. There is engagement with the company involved in the case of Friedreich’s ataxia. The Department had been awaiting responses, but that engagement is vital to trying to get this resolved for Friedreich's ataxia cases. --- Source: Houses of the Oireachtas. Licensed under CC BY 4.0 (https://creativecommons.org/licenses/by/4.0/). The Official Report is revised after first publication; the fetch timestamp below identifies the version quoted. Record URI: https://data.oireachtas.ie/akn/ie/debateRecord/dail/2026-05-20/debate/main Retrieved: 2026-09-28T05:50:47+00:00 Sitting date: 2026-05-20