I acknowledge the presence of my colleague, an Teachta Robert O'Donoghue. Along with our constituency colleague, Deputy Boland, we have been working with a number of groups in our area to try to secure long-term housing solutions for persons with disabilities. This morning, I want to focus specifically on one service. It is an organisation known as Remember Us. I will not try to tell the Minister of State what my view of Remember Us is but I will tell him in her own words what the founder, Nora Roban says. When she was asked why Remember Us, a club for children and adults with special needs, was set up, she said:
The answer is simple. My son Paul has special needs. It is absolutely vital for people with special needs to develop their social skills and self-esteem early in life, to help integrate into society. I instinctively knew that without developing this side of his life he would always feel inadequate and isolated from society. This would inevitably lead to even greater problems as he got older. After years of searching and failing to find such a place, I decided to set up Remember Us, for Paul and for other children like him.
The key here is about integration and that feeling of not being isolated. I know that there are clubs like Remember Us and services like those of Prosper Fingal across the State. They are working really hard to provide services. However, we attended a meeting just before Christmas in the building that Nora runs Remember Us out of. We met with parents there. They all had one concern. This will not be new to the Minister of State and I thank him for being here this morning to take the Topical Issue. They all had one concern. That concern is around what will happen to their loved ones, their adult children, when their parents are no longer able to care for them. We are talking about people who are in their 60s, 70s and in some cases in their 80s and older, who are absolutely terrified at the prospect of their loved ones having to go into a nursing home. I think we can all agree that a nursing home is not an appropriate place for a person. A nursing home is a place for an elderly person, not a person with disabilities, intellectual or physical disabilities.
I, like others, was somewhat shocked when I read Fergus Finlay's column when he wrote that he had seen a letter that had come from the HSE. It advised a parent that they are legally obliged to support their daughter, and that includes the provision of accommodation - accommodation that will go on after the parent has died. It is not within the gift of parents to provide that. What I am asking the Minister of State to do this morning is to perhaps outline for me what kind of joined-up thinking is happening. There is nothing more certain than these young people becoming young adults and older people. There is nothing more certain than that their parents and loved ones will not be in a position to care for them. That is why the organisation Before We Die has been set up.
Some work is going on. I know Remember Us has ambitious plans in terms of establishing a small community of appropriately sized houses but it goes back to the foundation and the reason Remember Us was founded. It is about inclusion. It is about people with disabilities being in their own community, with their friends and in an environment that they are familiar with.
It is about ensuring they have that level of support.