I want to raise the issue of obtaining an ankle-foot orthosis, AFO, brace for a child with cerebral palsy in Cavan. I was contacted by the mother of a four-year-old child who has cerebral palsy. Children grow very fast and muscle grows faster than bone. These braces become too tight and non-workable as a child grows, so they have to be replaced on a regular basis. The mother realised that she was outgrowing the brace last November so she contacted her CDNT and informed them of this. They referred the child for new braces to Ottobock, a company based in Cappagh Hospital that has an outreach clinic in Cavan. That referral was made in November. In January, she received correspondence that there was an appointment on 13 February, so already we have a two-and-a-half-month wait for this appointment. When the child attended the appointment, she met a very experienced person who measured her for the brace, and said if she could order it directly she would have it within a week. However, it could not be ordered directly because there is a requirement to get a purchase order from the HSE to cover the cost of the brace. She applied for the purchase order that day. It was granted last week, into the middle of April. We have a two-month delay in getting the purchase order. In the meantime, the child has outgrown the brace completely and can no longer wear it. She is trying to walk as best she can without the brace. Her mother and father have seen regression in her legs. Her physiotherapist has seen regression in her muscles and in her legs as well. Due to this delay, the child is suffering this regression. When the purchase order was granted and they contacted the mother, they wanted to order the brace straight away but the mother pointed out that two months had passed and the child had grown again since then. The brace may not fit so she needs another appointment. She has an appointment for this Friday to have the brace remeasured but they have informed her it could take three weeks after that before the brace is delivered. They are made here in Ireland but it will still take about three weeks. The mother is really worried. She has seen the regression in the child. She said that her daughter may now need to go for serial casting, although hopefully she will not. That would mean that she would have to go to Cappagh, get a cast on her leg, and go back the following week to get the cast off and see how much the leg has moved back into the correct position, and get another cast put on.
It is a procedure that would have been totally avoidable had the brace been ordered on time and given to the little girl to allow her to walk.
Now you might say that maybe this is just a once-off, but it is not because the mother had to wait three months last year for the same thing. This is the second time it has happened so it is likely happening to other children as well. I therefore want to highlight this. I ask for a much better procedure in having leg braces replaced. A mother should not have to wait months for an initial appointment, first of all. Okay, this mother allows time for that because when she realised that the child was growing out of the brace she notified the CDNT straight away to ensure that a new brace could be ordered, but there is no excuse for the two-month delay on a purchase order for something the child will need on an ongoing basis. When the mother tried to follow up on this to see who was responsible for this delay, she could not get an answer. She contacted Cavan General Hospital because she was told it was a matter for the paediatric department there. Everyone she talked to said, "No, it is not me, but I will try to find out who it is." She was passed from pillar to post, and it is not good enough, so I want to know what can be done about this situation.