I was very concerned about this and specifically about the management of waiting lists, particularly for spinal surgeries. Because of that, along with the former HSE CEO, I undertook an audit into equity of access and waiting list management in CHI. Recognising the challenges families have faced regarding paediatric services, we also undertook a separate qualitative piece of work to try to capture their experiences away from the strict terms of the counting audit and to ensure their voices inform the development of services. The audit took much longer than I wanted it to and much longer than anticipated - I was correctly questioned about that in the House - but that time was essential to ensure that the findings, conclusions and overall report were accurate and robust. The report found no clear evidence of inequity between public and private patients, but it did outline important findings in governance, including recurring delays against clinical recommended timeframes and inconsistent documentation in relation to waiting list management, neither of which is acceptable.
Importantly, the patient and family feedback revealed dissatisfaction with waiting list management with significant emotional and health impacts, although it did not need revealing to anybody here as we were already aware. These impacts was not just for the children but also for the parents. Parents and families want to be informed, involved and treated with empathy and respect. Those findings were capable of being anticipated - I would not have initiated the report had we not had shared concerns - but nevertheless they are disappointing. We need to provide a better experience for children and their families. I have met with the HSE and CHI and I am more satisfied than I would have been 12 months ago that there is a different attitude in senior management in CHI in its responsiveness and care around this. I am not saying everything situation is perfect - I certainly would not say that - but I can see a real change in the reaction and response of senior CHI management to this audit and qualitative report, which I think is important.