I thank Deputy Ward for raising this issue. This is something I have been working on with families for over a year now, since this drug was approved by the European Medicines Agency. I have met many of those families. I met them when they were here last week, before they had their audiovisual room briefing, I have met them four, five or six times online and I met them past year in person - I have met them so many different times. Together, we have been working to try to get this drug approved within the Irish syste…